Guess what Lucy’s going to be!
Notice anything different?
NO MORE OXYGEN!
Lucy is finally toobie free! It’s great to see that beautiful face once again.
Lucy is raising money to help promote advocacy, raise awareness and show everyone just how awesome Down’s Syndrome is.
I hope you can help support Down’s Syndrome and team, Buddy’s Beauties, by making a small donation at Lucy’s fundraising page.
Lucy and I thank you so much.
I Veggies!
Healthy Heart Club, Update 2
Not many changes today. We started G-tube feedings which she has been tolerating just fine. Trust me, you don’t want this girl to go too long without any food in her belly, because if she’s anything like her mother (she is), she gets mean as a snake when she’s hungry (I’m a dead man).
The main thing today obviously was letting Lucy rest. She slept for 5 hours straight without moving an inch this afternoon. Followed by 3 hours of pure wiggling. It’s 10PM now and she’s once again fast asleep.
Speaking with the doctors, tomorrow we hope to start taking away some of the toobies that plague our sleeping beauty. On her right hand she has an IV and arterial line, which is boarded and wrapped up. This is referred to as her “clubbing hand”, as it works best as a bat. The other hand is covered with a sock secured down with a velcro restraint; child’s play for our little Houdini.
She has been doing well on 1 liter of oxygen all day long, which is where she was before surgery. The million dollar question is, will she still require oxygen after she has healed? Time will soon tell.
Healthy Heart Club, Update 1
There are few things as a parent that are as difficult as watching your daughter go through open heart surgery, especially twice. Putting her life literally in the hands of surgeons and doctors is a feeling far beyond overwhelming. Indescribable heartache.
They often say that life isn’t fair and for Lucy, that statement rings true. I would give anything in the world to trade places with her so she never had to feel pain again. She has endured and been through so much already, it breaks my heart to put her through it again.
Lucy is in surgery now and we are nervously waiting for updates from the rounding nurse. Knowing that she is on a heart-lung bypass machine and that her heart has been stopped to operate on is absolutely terrifying. Every time someone walks by, my heart sinks further into my stomach. It’s going to be a long day.
But amongst all of the tears and chaos, is the beginning of a second chapter in Lucy’s life; a healthy new beginning. For as much love and joy that little bug has in her big heart, she certainly deserves a healthy one.
Come back to us soon, sweet girl.
Our sweet little Lucy undergoes open heart surgery number two tomorrow at 7:30am.
Please keep her in your thoughts and prayers.
“You mean it ain’t me noggin’, it’s me peepers? Well that’s just loverly!”
father. husband. web designer. programmer. artist. geek. thinker. doer.
