Lucy Kate, Update I

A quick update on my daughter, Lucy. For those of you who are new to this, my daughter was born 10 weeks premature via emergency C-section on January 29th, 2009 with two congenital heart defects and Trisomy 21. She weighed just a little over 2lbs. at birth and we stayed in the hospital with her for 75 days before she was finally released to come home. For those of you who are not new to this and were there with us along our amazing journey, I thank you again. Your support meant a lot and still does to this day. Twitter raised over $3,000 for Team Lucy Kate for the March of Dimes, putting the team total well over $8,000. The love and support was overwhelming, bringing both my wife and I to tears. Please know that you guys have affected our lives and I’m forever grateful. I look forward to the day I can tell Lucy about her amazing story. We’re very lucky that she is here today. Given the odds, she is the definition of a miracle. I’m not a religious person, but I am spiritual and I know a miracle when I see one.

To make a long story short, Lucy has an Atrioventricular Canal Heart Defect and Tetralogy of Fallot, which are both very serious heart conditions. You can follow the links to learn more if you wish, but to summarize, she has a giant hole in the middle of her heart and it’s inefficiently pumping blood.

Lucy is scheduled to have open heart surgery on August 17th. She will be put on a heart-lung bypass machine during a 4 hour surgery that should completely fix her heart. She will remain in the hospital for anywhere from 10 days to 3 weeks, depending on her recovery. During that time, we will be basically living in the hospital. I just wanted to update everyone on her progress and surgery.

You can follow her twitter for more updates to come as her surgery gets closer.

My family appreciates your continued thoughts and support.

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  1. thedayhascome posted this